10.3205/12GIN197
Brunsmann, F.
F.
Brunsmann
Bremer, W.
W.
Bremer
Bend, J.
J.
Bend
Kopp, I.
I.
Kopp
Rietschel, E.
E.
Rietschel
Müller, F.M.
F.M.
Müller
Patient participation in medical guideline development on cystic fibrosis
German Medical Science GMS Publishing House
2012
ConferencePaper
610 Medical sciences; Medicine
Guidelines International Network
2012-07-10
2012
en
urn:nbn:de:0183-12gin1972
12gin197
text/html
G-I-N Conference 2012
Background: Cystic fibrosis (CF) is a life-shortening inherited rare disease. Procedural know-how of including patient experiences into the development of guidelines is still incomplete, especially in rare diseases. Context: Procedural elements were established to make CF patient experiences on medical[for full text, please go to the a.m. URL]
G-I-N Conference 2012